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In Their Own Words: Williams Syndrome Awareness Video Blog

May is Williams Syndrome Awareness Month. According to the Williams Syndrome Association, Williams syndrome is a rare genetic condition that affects just one in 10,000 people worldwide. It “is characterized by medical problems, including cardiovascular disease, developmental delays, and learning challenges. These often occur side by side with striking verbal abilities, highly social personalities, and an affinity for music.” The blog features video interviews with four of our individuals with Williams syndrome: John Libera, Emily Webster, Ben Monkaba, and Tori Ackley. All videos were created by BHMA LIVE member Eman Tuzman-Eagan as part of his vocational programming. 

John Libera

Emily Webster

Ben Monkaba

Tori Ackley


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